Goodbye from Simone….

Many of you will already know that Simone, our Disability Connect project officer, has moved on to pastures new! This is her goodbye message that will go out in the newsletter…

Hi everyone

By the time you will receive this newsletter I would have left ADKC after 10 years of and working in four different projects, to start a new job.  I have really enjoyed my time here at ADKC and it has been a real pleasure to work and meet with you all.  I have learned so much at ADKC and am thankful to have been given so many varied opportunities in one organisation.  I would like to thank you for all your support at ADKC in particular when I was the Consultation Officer and would constantly call to invite you to the various consultations I used to run here.

I would also like to wish all the Disability Connect clients all the very best and truly hope that you get to fulfil all your dreams and goals.

Best wishes to you all,


Posted in Latest News Tagged with: , , ,

Meetup at the V&A -10th Sept.

Kensington and Chelsea Meet Up invite you to Get together at The V&A

On Monday, September 10, 2018  at Victoria & Albert Museum, Main Entrance, Cromwell Road, Cromwell Road, South Kensington, SW7 2RL

Let’s explore some free exhibitions the museum has to offer. Free coffee afterwards! Bring some money if you wish to buy any sandwiches, snacks or gifts. We hope to see you there!

Open to members of ADKC and SMART

To find out more and sign up, please go to

If you’d like some support to get online and sign up, please talk to Martha at ADKC 020 8960 8888

Posted in Latest News, Upcoming Events Tagged with: , , ,

Patient transport survey

ADKC has been asked to share Transport for All’s survey on your experiences of Patient Transport services…. this is what they have to say. The link to the survey is at the bottom.

Transport for All is looking for evidence from Disabled and older Londoners who use patient transport, following concerns about the eligibility criteria.

OurAdvice Line recently received many calls from Disabled and older people being denied patient transport services by the Royal Free Hospital despite having a genuine need for it. In some cases, people have been denied this vital NHS funded transport for their appointments despite previously being eligible in the past.

We are concerned that patients are not being asked the right questions when applying for patient transport and that the phone assessment process is not being carried out fairly. We believe this leads to Disabled and older people being refused access that they are truly in need of and we want to know whether this practice is happening at other hospitals across London.

Take action – respond to our survey

Transport for All is looking for Disabled and older people who have booked, or tried to book, patient transport within London in the last year to complete a short survey about their experience with arranging patient transport.

Does this sound like you? If so we’d like to hear about your experiences, whether you were refused this service or not.

The survey should take no more than 10 minutes to complete. By responding you will help us gain a better understanding of the problem and allow us to gather testimonies to persuade hospitals to improve their patient transport services.

The deadline to respond is: 31st August 2018

Click here to respond the survey.

Alternatively, please contact us if you would like printed copies of the survey or respond it over the phone:

Please do not hesitate to share this survey/information with anyone who may have used patient transport in London in the past year. We are also happy to send you copies of the survey for your local group/organisation.

Posted in Campaigns Tagged with: , , , , ,

New email scam warning

ADKC has been alerted to a new email scam that is going around – DO NOT RESPOND TO IT as it is a scam!

The email contains your password (from a previous security breach) and asks you to pay a huge ransom to stop images of you watching pornography from being released to some of your contacts. This is TOTALLY UNTRUE. It is just a scam to make you pay money to a criminal.

Action Fraud is an organisation run by the police that investigates fraud… this is what their website says about this scam (although the wording that we have seen is a bit different from that below).

Cyber criminals are sending victims their own passwords in an attempt to trick them into believing they have been filmed on their computer watching porn and demanding payment. 
There have been over 110 of reports made to Action Fraud from concerned victims who have received these scary emails.
In a new twist not seen before by Action Fraud, the emails contain the victim’s own password in the subject line. Action Fraud has contacted several victims to verify this information, who have confirmed that these passwords are genuine and recent.
The emails demand payment in Bitcoin and claim that the victim has been filmed on their computer watching porn.

An example email reads;

I’m aware, XXXXXX is your password. You don’t know me and you’re probably thinking why you are getting this mail, right? 
Well, I actually placed a malware on the adult video clips (porno) web site and guess what, you visited this website to experience fun (you know what I mean). While you were watching video clips, your internet browser started out working as a RDP (Remote Desktop) with a key logger which gave me access to your display screen as well as web camera. Just after that, my software program gathered every one of your contacts from your Messenger, Facebook, and email. 
What did I do?
I made a double-screen video. First part shows the video you were watching (you have a nice taste omg), and 2nd part displays the recording of your webcam. 
Exactly what should you do?
Well, I believe, $2900 is a fair price tag for our little secret. You’ll make the payment by Bitcoin (if you do not know this, search “how to buy bitcoin” in Google). 
(It is cAsE sensitive, so copy and paste it)
You now have one day to make the payment. (I have a special pixel within this email message, and now I know that you have read this e mail). If I do not receive the BitCoins, I will definately send out your video recording to all of your contacts including close relatives, co-workers, and many others. Nevertheless, if I receive the payment, I’ll destroy the video immidiately. If you need evidence, reply with “Yes!” and I will send your video to your 10 friends. It is a non-negotiable offer, therefore do not waste my time and yours by responding to this message.

Suspected data breach

Action Fraud suspects that the fraudsters may have gained victim’s passwords from an old data breach.
After running some of the victim’s email addresses through ‘Have i been pwned?’, a website that allows people to check if their account has been compromised in a data breach, Action Fraud found that almost all of the accounts were at risk.
Last month, fraudsters were also sending emails demanding payment in Bitcoin, using WannaCry as a hook.

How to protect yourself

  • Don’t be rushed or pressured into making a decision: paying only highlights that you’re vulnerable and that you may be targeted again. The police advise that you do not pay criminals.
  • Secure it: Change your password immediately and reset it on any other accounts you’ve used the same one for. Always use a strong and separate password. Whenever possible, enable Two-Factor Authentication (2FA).
  • Do not email the fraudsters back.
  • Always update your anti-virus software and operating systems regularly.
  • Cover your webcam when not in use.
  • If you have receive one of these emails and paid the fine, report it to your local police force. If you have not paid, report it as a phishing attempt to Action Fraud.


Posted in Latest News

Town Hall Drop-in cancelled today 7th August

Unfortunately, due to staff shortages today in the ADKC office, the Independent Living Drop-in that was due to be held today at the Town Hall has had to be cancelled.

Posted in Latest News

Cancellations for August

Cancellations for August 2018.

As many of our members go away or need to look after their children during the school holidays, some of our groups will NOT be running in August.

The following are NOT running in August :

The Independent Living Surgery ( CANCELLED – was due to run on Weds 1st)

The Personal Budget User Group ( CANCELLED – was due to run on Weds 15th)

The Positive Rights Action Group  (CANCELLED – was due to run on Mon 20th)

Access Group Meeting

Posted in Latest News

Focus group about RBKC’s online information

New event…. Would you like to have a say about the Council’s online information for disabled residents?

ADKC have been asked to arrange a focus group about how well, or not, the website works for local disabled people… and what could be improved.

We will be looking at the website on computers,  laptops, tablet devices and even on smartphones. If you have your own device.. feel free to bring it along!

Whether you are confident with using the internet or not, we would like to hear from you!

We would also love to have people who need to use “assistive technology” to be able to access the internet to come along!

If you are available to come to Kensington Town Hall, from 11-1 on Friday 20th July, and would like to get involved, please let Jenny at ADKC know on 020 8960 8888 - or email

Posted in Independent Lives KC, Latest News Tagged with: , , , ,

Free talk on 17th July

One of ADKC’s members has informed us about the following event:

Through a discussion of their beautifully humane novels, authors Alice Burnet (Ideal Love) and Anne Patterson (Yes) explore the effects of medical conditions on everyday life. Both novels were published in late 2017 and they both use a medical condition to ask what matters in life.
This is also a talk about the power of illness to destroy and also to bring us closer to other people.
Tickets are free but booking is essential. Those who come will be offered a free glass of wine.
The meeting will be taking place on Tuesday 17th of July from 6.00 to 7.30 pm at The Kensington Central Library Lecture Theatre.(This is situated at the back of the library off from Campden Hill Road).
NOTE – this event is not organised by ADKC so unfortunately we could give no further information.
Posted in Latest News Tagged with: , , ,

Newsflash – summer 18

Our Summer 2018 newsflash is now out.

You can read a copy by clicking the following links:

Newsflash summer 18 pdf

NEWSFLASH Summer 2018 large print word

Don’t forget that you can see all the previous Newsflash on our publications  page

Posted in Latest News

Benefits News – PIP and UC

Recent news:

Universal Credit – a court case has decided that 2 men who lost the severe disability component after changing from “legacy benefits” to the new Universal Credit were treated “unlawfully”. (external link)

Personal Independence Payments -

1. People with the highest awards, and whose condition is not expected to get better, will no longer have to go through continued re-assessments for PIP.  Guidance is due out in summer though, so this has not yet been implemented.  (external link)

2. The government has withdrawn its appeal  against a court case about how activity 3 on the PIP form should be scored. This will mean that many more people will be able to score points about managing a therapy or monitoring a health condition.

Posted in Latest News