Grenfell Tower – updated information

For up to date information for people affected by the Grenfell Tower fire, please see the council’s link -

https://www.rbkc.gov.uk/newsroom/all-council-statements/emergency-contact-numbers

Posted in Latest News

Independent Living and Care Fair -postponed

We have just found out that we will not be able to hold the Independent Living and Care Fair on Monday.

As you will all undoubtedly be aware – the tragedy affecting residents of Grenfell Tower and their families and friends, has lead to the entire community coming together to donate time, comfort and items. So great are these kind donations that the venue we were due to use is now being used to hold donations and coordinate support . We are therefore cancelling the event… but I am sure you will agree that this is for good reason. 

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Grenfell Tower advice

We are all aware of the terrible fire in Grenfell Tower this morning.

The Royal Borough of Kensington and Chelsea have provided this official advice. 

There is a dedicated emergency line at the casualty bureau 0800 0961 233 if you are worried about people unaccounted for.

Residents who are displaced due to the fire can call 020 7361 3008

 Chelsea and Westminster and St Mary’s Hospitals, as well as other London hospitals, are really busy dealing with the injured and the discharge teams and British Red Cross are deploying extra staff to cope with the numbers so please only attend A&E if it is an emergency and use NHS 111 and GP surgeries wherever possible.

The main rest centres for displaced residentsare as follows: 

·         Rugby Portobello Trust, Walmer Road, W11 4EY

·         St Clement Church, Treadgold Street, W11 4BP

·         Westway Sports Centre, Crowthorne Road, W10 6RP – Please use Westway Sports Centre if possible as the other two are reaching capacity.

However the following is a list of some of the other organisations in the local area providing shelter and provisions:

  • The Clement James Centre
    95 Sidar Road, W11 4EQ
  • The Venture Centre
    103A Wornington Road, W10 5YB
  • The Latimer Christian Centre
    Bramley Road, W10 6SU
  • St. James Church
    St. James’s Gardens, W11 4RB
  • Notting Hill Community Church
    Kensington Park Road, W11 2ES
  • Griffin Gallery
    21 Evesham Street, W11 4AJ

RBKC local Mental Health providers, Hestia, Smart and Kensington and Chelsea Mind are providing emotional support to those affected directly or indirectly by this event so please refer people onto them as required, contact details on their websites.

The rest centre for those concerned about friends and family is Salvation Army, 205 Portobello Road, W11 1LU

If you would like to volunteer to help with the support effort please contact 020 7361 3008 and let us know your skills

For any further updates please check the Council’s website on https://www.rbkc.gov.uk/newsroom/all-council-statements/fire-grenfell-tower

Kensington and Chelsea Social Council also add:

How to help
The main way you can help is by directing anyone in need of assistance to Portobello Rugby Trust (RPT), 221 Walmer Road, W11. This is now the main rest centre for those who need immediate assistance. Those directly affected and in need of assistance should be signposted there.

You can also help by offering a space to friends and family. The RPT team is on site right now with many of the residents and we will let everyone know as soon as possible what is needed. They are collecting information on what is needed and what is available on their Facebook page.

There will be many people needing long-term support and supplies and to be most effective in supporting them, they are asking everyone to please hold off on dropping anything to RPT until they can put together a list of what is needed.

Giving Donations
The Kensington and Chelsea Foundation has launched an appeal for funding with support from London Funders and the London Emergency Trust Fund. To find out how to donate please click on the link Donations  and when you have indicated the amount you wish to donate, tick the box Grenfell Tower Appeal. Every penny raised will go to those affected.

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Social Care special – Surgery with Marcia Richards postponed

At our March 17 Disabled People’s Quesition Time meeting, Triborough Director of Adult Social Care – Stella Baillie,  suggested that members with social care questions / issues might value having a surgery with senior social care managers.

As a result, Marcia Richards Head of Services – Royal Borough of Kensington has agreed to hold an Adult Social Care Surgery at ADKC on 21st June, between 1.30-4.30 where anyone with a question or complaint about care services, can come and get one-to-one advice.

Marcia has visited our Personal Budget User Group before and has come along to our Question Time event in October 16, and members have found her approachable and knowledgeable.

To ensure that Marcia is able to properly respond to the question or issue that you wish to raise – she will need full details at least a week in advance.

Therefore, it is vital that you contact Jenny Hurst by the 12th June with details of the issue / enquiry so she can pass on the outline of your issue, and book you a private appointment with Marcia. 

You can contact Jenny at the office,  on 020 8960 8888 or email pbsupport@adkc.org.uk

Don’t forget also to come along to our Independent Living and Care Fair on the 19th June!

Posted in Latest News, Personal Budgets, Upcoming Events Tagged with: ,

Royal Academy – InMotion Tours

A message from our colleagues at the Royal Academy for people with mobility difficulties

 

InMotion: Tours for mobility impaired visitors

This season, join us for tours of our newest exhibitions, designed for wheelchair users and mobility impaired visitors. Read on for more details.

These events includes refreshments, and volunteer support is provided.
Sessions are free but have a limited capacity. Please book in advance

Summer Exhibition 17

Summer Exhibition 2017

Monday 10 July, 9–11am

Join us for an early morning tour of the Royal Academy’s annual Summer Exhibition.

This is the world’s largest open submission contemporary art show. See new and recent art created by everyone from emerging artists to the biggest names in contemporary art and architecture. Book now.

A person showing another visitor a painting

Matisse in the Studio

Monday 18 September, 9–11am

Join us for this early morning tour as we explore the eclectic collection of Henri Matisse, drawn from the far corners of the world.

Our tour will reveal how these objects took on new life in Matisse’s transcendent art. Book now.

How to book

Tickets can be booked online or by contacting our Ticketing Team by emailing tickets@royalacademy.org.uk or call us on 020 7300 8090.If you intend to use one of our wheelchairs during your visit, please be aware that there are a limited number available. We strongly advise you reserve these while booking your ticket.
Book now
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Spring 2017 Newsflash now out

Our Spring 2017 Newsflash is now available.

If you are an ADKC member and would prefer this to be sent to you in a different format, pleaase let us know.

This newsflash and our other publications can also be found on our publications archieve page

 

Posted in Latest News

Minutes for Feb 17 Disabled People’s Question Time

We now have the minutes for the Disabled People’s Question Time that took place on 23rd February 2017.

For a downloadable file in word of the below, click this link. Disabled People’s Question Time Feb 2017 – Minutes

Kensington and Chelsea Disabled People’s Question Time

Thursday 23rd February 2017

Present: Larry Da Silva, Beverley Wade, Lili Djuric, Sarah Mutesi Kibidi, Janet Forbes, Nick Wimborne, Paul Meade, Maria Pace, Susan Milbourne, Glenda Joseph, Margaret Cairns-Irvin, Roselyne Strebel, Marian O’Donoghue, Dorota Zielinska

Chair: Jenny Hurst

Panelists:

Judith Blakeman (JB) is the councilor for Notting Dale Ward and the Labour group’s spokesperson for Housing and property.

Geoff Taylor Meade (GTM) is Partnership Support Manager with the DWP. His remit is broad in terms of welfare, but unfortunately he is unable to comment about the other aspects that people might raise.

Victoria Borwick is the MP for Kensington.

 

Training -

Q. The Department of Transport has a programme to support more people to become mechanics (and other technical jobs). Why can’t this be run here?

Panel members were not sure what the scheme was.

Action: ADKC to find out more and feed back.

 

Transport:

A recent court case clarified that bus drivers should be doing more to ensure that wheelchair users are given priority for the wheelchair space in the bus. Transport for All is a good organisation that takes up disabled people’s issues.

Actions: 1. Disabled people with issues about accessing public transport can contact their councilor / MP who can help them raise the issue with Transport for All.

2. Members of the mobility forum will keep transport issues in mind.

 

Health and Social Care:

Q. How we can work together to improve things with Health and Social Care leading up to and following discharge from hospital

A. NHS and Social Care is in crisis but RBKC is not as bad as other areas.Local authorities can increase council tax to pay for Social Care. RBKC has increased council tax but none is being put towards Social Care. We all think that Health and Social Care is important but people who pay council tax might find increases difficult. Discharge services are commissioned by the Clinical Commissioning Group (CCG). The service seems better in the South (Chelsea and Westminster) because there is a social services team in the hospital (as it is located in RBKC) but also because many richer people in the south choose private health care – so there is less demand on the NHS. The other hospitals are not in the borough and St Charles is a different type of service.

Actions: 1. JB and the Labour group to feedback concerns of those present and recommend that there should be an increase which is ring-fenced to social care.

2. VB can raise delayed discharge / lack of services after discharge issues with the appropriate people.

Q. Why are there are no fibromyalgia services in the borough when other boroughs have them?

A. The decision was that there were too few people who would benefit.

Q. Why are Mental Health services only available for people in crisis / when they have tried to kill themselves – wouldn’t preventing deterioration be better for all?

A. There will be a new service – in Malton Road – but it doesn’t exist yet.

Q. There are two contracted Homecare providers in the borough – MiHomecare in the North and Mears in the South – they have very long contracts and there are big problems with the services that they provide. What is being done about this?

A. Panelists were unable to comment but suggested other people who will better be able to answer questions around social care.

Actions 1. ADKC to follow up with appropriate people and invite them to feed back at the next meeting.

2. Local disabled people are welcome to raise concerns with their local Councillor / MP who will forward on their concerns.

Q. Why does it take so long to get adaptations completed?

(Question unanswered for reason above and will be carried over to next meeting)

Benefits/ Welfare:

Q. Why do we always have to start from scratch when we already have a history with you?

A. Although you always have to do a new form, what you wrote previously is taken into account.

Q. What about if you have difficulty communicating or you have a mental health condition (instead of or as well as a physical health condition).

A. Many people find it difficult to complete benefits forms, so it is vital to get help completing the forms, especially if you need help communicating your difficulties and /or when you have mental health issues too. If you have good and bad days – think of the difficulties you have on the bad days.

Q. Why aren’t people with serious medical conditions and plenty of evidence believed?

A. The benefits system is based on rules and a process – it doesn’t discriminate between people with a severe problem and people with less severe problems. It is important to have good supporting evidence from medical professionals. If you don’t agree with the decision you can ask for the mandatory reconsideration and appeal.

Q. What about people who are too unwell to go through the appeal or who have other things to worry about? There is only a certain length of time you have.

A. You should be able to get help with an appeal. You should also be able to have someone with you.

Action: GTM to provide information about the local services that he has contact with who can help.

Q. The government wants more disabled people to get into work but it seems that they make it very difficult. Why aren’t there systems in place that help, not hinder?

A. There are flaws in the system. Sometimes one department doesn’t talk to the other and often complaints are due to the delays. There have been issues supporting people who transition from benefits to works but Universal Credit should minimize these and make things easier.

Also, a recent consultation event enabled local disabled people and employers to comment on the Work and Health Green Paper, including looking at the Work Capability Assessment which many people successfully appeal. RBKC ran an event to hear from local people to inform reports that have been sent to the government.

Q. How can we persuade employers to take us on when we are having all the worry of battling with the DWP?

A. There is still disparity between working disabled and non-disabled people. At the event, employers too said that they needed more support when employing disabled people too. Disability Confident is set up for this and to be a support network (for employers).

Q. What is the situation regarding people are having to pay the Bedroom Tax?

There are still discretionary housing payments (DHP) that you can contact the council about. They decide whether to pay them or not and they cover some of the cost for a short time (the length of time is also discretionary). Sometimes working with housing associations to find a smaller property from within their own stock works well.

Regeneration / local changes:

Q. In the north of the borough, there has been regeneration resulting in the loss of easy wheelchair / ambulance access to the disabled adapted housing. What can be done?

A.It is important to bring such issues to the correct person – either the local councillor or to the appropriate council officer.

Q. Also what can we do about the missing dropped curbs, or places where they are no longer protected by double yellow lines (to prevent parking)?

Actions: 1. JB to ask Ward councilor to get in contact with member.

2. Disabled people can raise issues of access with the ADKC Access Group.

3. ADKC Access Group can collate information to bring to the appropriate cabinet member or council officer.

Q. What will be happening about ADKC when there is regeneration in the area?

A. This is definitely something you need to raise with Nick Paget-Brown at the next meeting. From the plans that were on display recently, there doesn’t seem to be any provision for ADKC, the Latymer Community Church, the Pig and Whistle, or for parking. Representatives will be available between 1-5 on Friday afternoons at ADKC to discuss plans.

JH thanked Westway Development Trust who have kindly sponsored our two Question Time meetings – the next is the same time next month – 23rd March – when we will hear the updates from this meeting.

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PB user group helps NHS create personalised care plans

“Experts by Experience” from ADKC’s Personal Budget User Group met with key officials developing Personalised Care Plans for use with Personal Health Budgets.

A group of 8 people with a lot of experience about care and support plans (for themselves or for relatives) met with officials from the NHS digital health team to help them explore what people’s experiences were when it came to what should be in a personalised support plan.

We discussed:

  • What are people’s experiences of Personalised Care and Support Plans?
  • What people think should be in a personalised plan?
  • What type of information should be covered?
  • Whose words should be reflected in the plan  and who should write is?
  • Who should have access to all or some of the plan?
  • What type of technology could be used to help people keep their plans up to date?
  • What concerns do people have about using comuterised care plans?

Our meeting is one of 6 – 3, including ours are for people with longterm health conditions and 3 others are for people with learning disabilities or Autism.

Once all meetings are completed the NHS will use the research to make sure that people on Personal Health Budgets can benefit from personalised care and support plans!

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Monday’s PRAG cancelled.

We have had to cancel our upcoming (March 17) PRAG (Positive Rights Action Group) meeting. This is a one off.

Don’t forget though that our Disabled Person’s Question time (part two) is on Thursday 23rd March from 4-6. We want a good turn up!

Posted in Latest News, Positive Rights Action Group (PRAG) Tagged with: , , ,

Great news – swim vouchers!

We have been told that the free Swim Voucher scheme is going so well that we can continue to offer them for a bit after the official expiry date.. so come along and get yours to enable you to have a free swim at Kensington Leisure Centre!

See our previous post for more information by clicking here .

Come along and collect yours from recieption in ADKC.

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